Sleep Study take #2

On January 30th Carter had his second sleep study. We FINALLY got the results back only about 10 days late! Anyways when Dr. Gelfand called the first thing he said is "your child is going to drive me to drink" why do doctors say things like that?!?! 

Starting with the GREAT news Carter had no obstructive apnea meaning his airway is perfect!!! I have been waiting two years to hear that and it feels so good. 

He still has some central apnea meaning the brain doesn't send the body the signal to breathe. The first study he had 96 apnea events in four hours and this time he only had 13. Dr. Gelfand said because of Carter's history that is just slightly above what he is comfortable with.

He said we can do two things.... First- we just blow it off and don't worry about it because lots of people have apnea and decanulate. Second- we do a MRI of his brain to make sure that there isn't any brian stem damage that we are missing. He said he was confident that it would show nothing, because there usually is more signs that we would notice.

We of course decided to go with the second option to make sure we are as safe as we can be. So after we get the MRI back and assuming it comes back regular we will DECANNULATE!!!!!

I am completely in shock that we are actually getting to the end of the trach road. It seems so surreal! We are so excited and so proud of our little guy. Go Carter Go!!!!!!