So Friday night when I went back to the hospital I asked the doctor if we should now schedule a care conference to figure out what we need to do going forward. His reply "there really in no need. It is very clear what the issue is and what needs to be done" he goes on the tell me that all we need to do was get the ENT the pediatric anesthesiologist and the pediatric surgeon to figure out a time with the OR to perform a tracheostomy. He said probably Tuesday or Wednesday.
Saturday Trav goes in to see the little man and talks to the head neo Dr. Santiago and picks his brain. He goes on to say that we wouldn't do surgery until he is full term so at least two weeks or we have the option the wait three weeks do another round of steroids and give him one last shot at CPAP.
Here are some thoughts we have had
- He did great on CPAP last time for Carter. Seven hours was great for him, but it is not that long. He needs to he able to last for good next time.
- If he did get a trach it would be best case senario because he most likely wouldn't require ventilator support and that throws out a lot of nurses being in our home time.
- If we don't do surgery it is a vey big possibility that in 3-4 weeks we might be back in the same spot and end up doing surgery.
- Is three weeks of growth and another round of steroids all he need?
- A trach will expedite him home. It will be more of a sure time and won't be so many if's.
Needless to say we were totally thrown for a loop when they put the maybe back in there. We hate to not give him another chance if he's got one, but he just hasn't shown that he's got what it takes. Dr. Santiago said if it were his kid he would give them another shot. Since I trust every word that leaves that mans lips I think we are going to give it another shot. More waiting and lots of praying. Go Carter Go!!!!
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2 comments:
it seems like every hour can bring change right now, whether it's good or bad! Dr. Santiago seems to be a trustworthy guy & if you trust him, that's great! we'll continue to pray for him (& you guys) that the best decisions will be made & that his body will handle whatever's dished out to him. he's a tough little fighter :)
also...loooooove the picture of Boston looking through the window!!! i can only imagine him with you & Trav, trying to break down the door or through the glass to get to his little brother. so cute...heartwarming yet heartbreaking. we love you guys!
holy crap, can i give you a hug right now?
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