What Changed?

After posting that we have NO plans for Cincinnati this summer on Facebook everyone keeps asking what changed. Well nothing has changed at least as far as his airway is concerned. Our Doctor said that he can't send us there without failing multiple dilation attempts. We are beyond thrilled with the change of plans! So in order for us to to start our new plan little man NEEDS to let the O2 go. We were off after surgery and for the first time ever he didn't need it during the nights. Then RSV (um....seriously!) came along and it came back in a big way. He was up to needing 1.5 liters (that's a lot) and is now back down to an 1/8th. We can't start the dilation process until he has some good time off oxygen. When we get to that point they will go in a enter a surgical balloon and coat it with steroids to expand his airway. We will give it 6-12 weeks and then repeat if needed and then another 6-12 weeks. We really want to get this moving because if the dilation works then we are DONE WITH THE TRACH!!! The only hold up would be RSV season next year. If he needs multiple rounds which they are pretty darn certain he will we will get very close to RSV season next year and they will NOT take his trach out during it so we would have to wait another year.

This is most definitely an answer to our prayers. The thought of surgery about put us on our death beds not to mention the financial killer it would have been. Both insurances most likely wouldn't have covered it and the cost of living here and there for a couple months would have about killed us.

Prayers are real. Prayers are answered. That I KNOW.