Yummy Boy. Love those dark eyes!
I feel like 2 weeks is the answer to everything lately. We wait 2 weeks to try CPAP again. We wait 2 weeks for the ENT to come. We wait 2 weeks to see if his eyes are improving. We wait 2 weeks to have a care counsel with the Doctors. Ahhhh I am going to go crazy waiting. I guess by now I should be used to waiting, but I am not. So the plan going forward for now anyways is that we will try to ext abate two weeks from our last try (March 3rd) at that point they will have an ENT come in with a fiber optic camera and look down Carter's airway and into his lungs while he is on CPAP to see what is going on for sure. The Doctors and ENT met last Friday to get on the same page. They are both pretty sure that there isn't any sort of mass or anything that would be the problem. Part of me was hoping that there was just so we could have something to blame it on. I soon realized that was pretty ridiculous. For 48 hours before we attempt to remove him off the ventilator they will give him a pretty heavy dose of steroids to hopefully help his little airway. If this attempt fails again they will give him another 2 weeks to try again. When he gets to 40-42 weeks gestational is when we will decide if we need to do trachea surgery. If he is getting stronger and better then they will hold off. If there hasn't been any or much improvement then we will have to get a trachea. We are very anxious to see what the ENT has to say and if the steroids help him. It will be nothing short of a miracle if his airway gets strong enough to breath on his own. Not much has changed other than that. We are just waiting on time as time is the only thing that will heal his airway. Wish we had more time.
5 pounds 15.7 ounces going straight to the cheeks. Brought home the Preemie clothes and brought in the New Born. We have now gone up two sizes in diapers, one size in clothes, and one size up on the pacifier.
Carter doing his pilates with the therapist. Another reason we need him off the vent. Developmentally it is not good for him to be on his back this long and with the vent it is too dangerous to move him around too much.
If you didn't pick up we are sure that we will not be home on or around our due date. This new news has turned this into a 6 month gig. Hopefully not longer. Definitely not the 4 months we prepared ourselves for
10 comments:
i am anxious to see what happens in two weeks too. time is a beautiful thing. we are praying for you!
I have been thinking about this little man. Gosh It seems like with every success there is 3 more trials. We are praying for you guys. I will be praying extra hard on March 3rd;)
Oh those cheeks! It's hard to believe he weighs that much. We'll pray his airway gets stronger and that he can get off of that darn vent so he can work on coming home.
holy smokes he is cute!!! Love you little man. Give him kisses for me.
oh dear friends, we've been praying non stop since we first read about this precious baby. We think of you every day and pray that you will continue to find comfort in the little miracles. He sure is gorgeous! I just wanna smooch my computer screen when I see his little (big) cheeks.
awww! That 2nd picture is SO cute! I love you guys!
Thanks for the link to your blog Teresa. It's brought back a lot of emotions reading through your posts. I hope you know we are praying for you guys.
I am so proud of you, honey, and of Travis. This is a challenge that is going to bring your family so close together. Carter is such a cute and strong boy. He will develop a deep and rich spirit as he endures this. You guys are so amazing and I love you!
I LOVE seeing him sit up doing his Pilates. He is so cute! March 3rd Here we come!!
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