Ok Ok I get it

I have been in a funk lately. Not sure what really triggered it, but I was having a hard time bringing myself out of it. I was having a hard time with the fact the since Carter has been home we really haven't made much improvement on his feeding and it is SO tiring and VERY frustrating trying multiple times a day to feed him and sometimes only getting a couple drops in his mouth. We would have random feedings where he would do so great and I would feel like we were making headway only for it to be smashed the next day. We have bought every bottle and sippy cup under the sun and nothing seemed to make a difference really. The daily trips to therapy were starting to get to me. I was putting so much pressure on myself for all his developmental progress or what it thought was the lack thereof. I felt like I couldn't keep up on my house. I am antsy about this whole dilation process and if it will be successful. Overall I was just in a major funk. I pray for improvements in the areas multiple times a day and felt like nothing was getting better. 

Well over the past week I was reminded over and over again that my prayers are being heard and answered. Let me share the ways.

One day we were at the sand park and a total stranger came up to me and said it was so good to see a trach baby out and about. She said that parents of trach babies really never take them out and it ends up hurting them in the long run. She said she was proud of us for trying to make things "normal" in something that is totally not normal at all. Come to find out she worked for Children's hospital and yep she made me cry. (note to self always always compliment parents who are living outside the "norm")

At physical therapy it was time to set his new 6 month goals. When she mentioned things like crawling, cruising furniture, bringing himself up to sitting from laying I got a little overwhelmed those all seem so far out there. Miss Lindsay reminded me where we were six months ago and how I thought things like sitting, reaching above his head, lifting his head to a 90 degree angle, bearing weight on his legs, all seemed unreachable. I get so caught up sometimes in the whole "my baby is 16 months old and barely moves" thing that I forget how MUCH progress he has made. I sure can't wait for him to get moving. He is ready and wants it and 16 months is a LONG time to wait for it.

Ever since Carter's dilation he has been eating like a champ! A major milestone was completing an entire jar of baby food. It took him a whole to do it, but we sure were proud. Before we would maybe get a couple bites in a day and would always have to throw away the food before it would go bad. He is still very aversive to food and puts up a fight, but holy smokes MAJOR progress. 

Random shoe sales person at Nordstrom was asking about his trach (love it when people ask, bugs when they just stare and stare) and I gave him a very brief description of his life. He reminded me that "nothing else matters he is here". I know this, but for some reason it made perfect sense coming from a stranger.

Carter is a moving boy. He is not on the move, but just over all he is just moving more. He finally decided that rolling from back to stomach was not the worst thing ever and is enjoying the freedom it brings him. We are loving looking over to find him in a new place in the family room.

He has been off oxygen for 4 days AND nights in a row. Something he has never done or even been close to doing. 

Not to mention the constant love and support and encouragement we feel from family. 

I felt like telling Heavenly Father ok ok I get it we are beyond blessed and I see it now. I am so glad that my eyes have been opened and I am back in to the mode of realizing the MANY miracles that we are blessed with daily. I love my family more than anything! My boys, all three of them are such a source of strength to me. Especially Travis, I tell you what that man is incredible! I don't know how he does all he does and so well. I definitely came out on top with him by side and know how blessed I am to have him.

*Sometimes when Boston is crying for no apparent reason we ask him if he just needed to get a good cry out. Apparently I just needed to get a good blog out. Sheesh

Major Instagram Dump

I love Instagram and need to give it credit for capturing a huge majority of the pics I take these days!

 Spending the afternoon at the sand/spray park almost daily.

 My dad got the boys this trampoline. Boston loves it and it's perfect for our tiny back yard. Carter much prefers to be on the outside.

 Rangers game with my brother and boys.

 I am pretty sure I could live at the Rangers ballpark. We went to the perfect day game. Sad Trav had to work, but amazing that Carter took and hour nap in my arms!

 Carter getting cozy during family movie night.

 Eating an orange marker. Both he and Boston thought it was the greatest thing ever!

 When Boston got word our swimming pool was open there was no stopping him from getting in. It was freezing cold and he hasn't asked to go back so I think he will listen now when I tell him it's not ready.

 Cheezer before school with different flops on. This was the first time in two weeks he hadn't worn his shirt backwards. I think we are back to normal with forward facing clothes and the same shoes. 

 Carter's way of letting us know he was done with his IV. There was blood everywhere. Of course he waited until night when everyone was asleep. He sure was proud of himself though.

 Time out. He really is such a good good boy most of the time. This particular day I would have have given him to almost anyone that would have taken him.

 Cute cheeks or big head, tiny bum.

 Carter was bugging Boston and it made me so happy to see him do something so normal. Boston was totally fine with it until he started pulling his hair and ears. 

 Dinner and spray park with the Hunters.

Rocking the new shades that HAD to be red.

Airway Dilation

We had to be at the hospital this morning at 6:30 am and he didn't get taken back until 8:30 go figure. He was pretty darn happy for us waking him up so early.


He had a serious conversation with daddy before and was making THE cutest faces.


He gave mom some great snuggles and caught some zzzzz before the docs came in.


When you become good friends with the anesthesiologist they sneak you back to the OR so you can hold your baby until he is out. Carter definitely comes with a lot of perks. The nurse told us the procedure would take an hour and a half. So when the coordinator came out twenty minutes later stating surgery was over our hearts sank. We immediately thought that something went wrong and they weren't able to do it. Scared the day lights out of us. We went in the consult room to wait for Doctor Rohn and when he walked in with a smile and said things went great we were a little confused. So to say we were relieved was an understatement. He cauterized a little piece of tissue off and noticed that there was more swelling in his airway than there was when he went down last month. We had taken carter off Prevacid a month ago and Trav and I were noticing that he definitely needed to go back on it so we literally put him back on it last night. Dr Rohn said the swelling was due to his retching so we definitely needed to stay on Prevacid. Hopefully the swelling will go down with less retching.


He had a very hard time coming out of anesthesia this time which was new for him. He was very agitated and was throwing himself around for a couple hours. It was so sad. Then all the sudden he kicked his leg up and was fine.


His tummy was bugging him, but after a huge blowout he was much happier. He has been very restless all day and we are all very excited to go home tomorrow. Besides bloody secretions in his trach he is back to normal as far as his saturation levels and we are pretty happy about that. Boston and Grandma D (who he referred to as his "sweet Jo Jo" all day) had a fun day together at the sand park and came to meet us for dinner.

Today is our one year anniversary of the day Carter came home from the hospital and I can't do a post without mentioning how blessed we are. It has been an incredible year with so many ups and downs. I love being a mother more than anything. I feel this year has really stretched me as a person. I have learned how to rely on my Heavenly Father in a way that I have never done before. I am still learning how to trust his timing better, but with that being said there has never been a time when looking back that his timing was a huge blessing in so many ways. I am continually amazed at all that Carter has overcame and sometimes can't even fathom that we were once told he had a 10% chance survival rate and I have this amazing thriving beautiful boy. He is no doubt a miracle and I am beyond blessed to be his mother.

PS. I still get so excited when I hear someone tell me that his lungs sound like those of a champ. After hearing that he sounds like a dishwasher for so long it's music to my ears.
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Texas Blue Bonnets

It's a must to take pics of your kids every spring in the blue bonnets. I have missed it the past couple years. I wasn't going to this year so I got the boys ready today and we were able to get some really cute ones in about 15 minutes. It's a good thing we went because they are already getting smashed down from everyone taking their pics.

This kid and pictures don't really mix these days. He is always pulling some face. I love it thought they are so him.

Carter Loves the grass and Boston Loves collecting things in jars so they both had a good time.

Uncle Kyle helped me get some good smiles out of this boy.

Getting a good pic of these two isn't easy these days.

So this is the best we got and I love it!

This is my favorite of Boston. Such a ham.

Clapping and smiles. Ahhh I love it!

Easter Weekend

We had such a great Easter Weekend!

Friday morning we started off with our daily bike ride and stick racing with friends.

Friday night we hit up our favorite place to play.

We LOVE the sand park

This boy LOVES the sand.

After the park Trav went to pick up his brother from the airport and the rest of us hit up Chitos then went home to watch Rangers opening day game.

Saturday morning we dyed eggs koolaid style. I'm a believer worked way better than the box stuff and much cheaper too. Later in the day we played with family and Trav, his brothers, and my brother went to the batting cages. They all payed for it and were so sore. I think they are getting old. Ha. That night Trav and his brothers headed to the game and we watched at home.

Sunday morning the Easter bunny stopped by and left a pretty good pile of dollar store toys for us to hit the pool and sand park with. Boston is a champ at the egg hunt and will probably not like it when he has some competition next year from little brother.

Seriously it doesn't get cuter than this. I wasn't sure if a tie would work with his trach. Boy am I glad I got him one he looked so cute!

Wilson party of 4 before church. Church was great! Our choir sang one of my favorite songs and did it beautifully. I survived my RS lesson. Funny story.... Trav had to take his brother back to the airport so Carter was with me while I taught. My two friends watched him and in the middle of the lesson he sneezed and popped off the speaking valve on his trach. It went flying across the room. Thankfully everyone just laughed as I took a little break to find it and put it back on. The joys of having a trach baby. I must add that he was so good while I taught. :)

The cutest boys ever!

I love Easter. It brings so much excitement with kids. I love it even more because it is a time to reflect back on the life of our Savior. I know that he died for me and I know that he lives. I feel so blessed to know what I do and am so grateful for all that I have been given.

So Close

He is pretty proud of himself too!

Little Man is so close to crawling! A bunch of Carter's reflexes never developed and because of that he has been on the slow track as far as developmentally. The only way for his reflexes to develop is by muscle memory. We literally have had to teach him how to move. Over and over again we help him get up onto all fours and he is so close to getting there himself. We are beyond proud of him and pretty much think everything he does is icing on the cake. Once we get him up on all fours we then have to work the actual crawling part, but I think that will come quicker that this has. Way to go Carter Boy!

Boys Night

There is nothing Boston loves more than "Boy's Night". Last week he and Uncle Kyle got to ride the DART downtown to meet Trav for a Mavs game. He was beyond excited! He asked a million and one questions on our way to the DART station I can only imagine how many he asked Kyle on the way there. Trav was just as excited as Boston was. He has waited forever to be able to do things like this where Boston was at an age the he appreciates them more. They had such a good time and if it were up to Boston they would have bought out the entire pro shop.

Trav was a lucky man last week with two guys nights. I am such a good wife, but he deserves it because he is an even better husband. My sister in law sent B down for his birthday to go to a Rangers game with his brothers. They had such a good time and really enjoyed being together.